Since my unexpectedly good news on Friday I got a new pain, in my side. At first I thought it might be kidney pain and the antibiotics hadn't worked. Then after drinking plenty on Saturday when my cousin was over it improved a bit in the afternoon so decided it was just the scarring on my kidneys playing up - being deyhydrated. Sunday it wasn't really evident but it got gradually worse by Tuesday and I started taking ibuprofen which worked. Wednesday morning I couldn't get out of bed until they'd started to work.
I had an appointment with the continence nurse in urology that afternoon so decided that was easier than queuing for a GP appointment.
The nurse said they usually see people a week after the op, not 3 months after, so she said I did really well trying any of them, let alone managing all three sizes. She didn't understand why the idiot that did the first op didn't refer me to her, nor why my first appt for referral was 2 months after op when I had the second. Told her I asked if this was an option a year ago and was told at Lincoln it was in fact standard, yet nobody at Pilgrim seemed to agree.
She showed me with her fisted hand what to do with a catheter and that we'd start with the smaller size and eventually work up to "a 16". I'm not sure if I'm just so used to medical procedures, that I knew what was involved before hand, having had plenty of catheters put in or that there is minimal feeling after surgery/treatment in that area, but it was pretty easy. I managed to get all three sizes in and the nurse seemed pretty impressed that I'd "done really well". I'm guessing there are some women who ONLY have that problem and are squeamish about the whole thing, whereas to me, with part of my intestine sticking out of my belly, it's just another daily task I have to perform to keep things "normal".
Doing this is an infection risk, as is the fistula which still remains in my pouch - meaning waste can get from Fatty's bag to my pouch, and out through the WRONG hole. Basically I'm just a walking infection risk - lucky I'm not on chemo, but if I do go back on it, I'm going to have to be ridiculously careful and lucky not to be living on antibiotics. I REALLY don't want to have to do that because they screw up the good bacteria in the remaining intestines causing more problems.
My urine tested fine, but could be antibiotics masking infection. I have some sample bottles, see continence nurse next Wednesday again and will do test for her and another for lab in case it shows anything then. Meantime I'm taking the ibuprofen which works.
If the pain gets worse then I'll go and queue up Friday morning for an appointment or ring up Dr out of hours but my scan is also next Wednesday (results 4th Feb). Quite likely it's just the "usual" pain moving, or something dumb like a pulled muscle from yoga (can't remember if I did any on Friday).
My stoma nurse is sure it's nothing to do with my bowels. She's never heard of anyone having pain with waste left in colon. Even if it is that, I'd have to see GP or consultant to suggest an enema or flush out anyway, they're not allowed to do it themselves without referral.
So, I'm now loaded up with boxes of "speedicath" catheters, wipes, antibacterial hand gel, larger waste bags, then my box of bags, dry wipes, small waste bags, adhesive rings, scissors, pen, adhesive remover spray, filter stickers, etc. I need to sort the shelving out in my bathroom to accommodate all my medical supplies!
Despite not having encountered Irene since November, my hair continues to fall out, whilst my eyebrows, leg, underarm (and *other*) hair is growing back. I guess it's the old ones still falling...not sure if they'll all go eventually, the ones that were around during Irene's reign? Anyway I cropped it one night at the weekend. I'm so sick of pulling even chin length hairs off my clothes and my pillow, sweeping constantly. It makes me feel grubby having hair all over my house. It balls up on towels in the washing machine - like it does in the bath plughole. That makes me gag.
Weekend Reading, 7.16.17
4 days ago