I still haven't seen Dr Tom again - because I've still not had a bone scan appointment through. Still a shortage of "nuclear medicine" apparently. No idea what they found on the MRI at this point either, because of the bank holiday. Unlike before though, I'm not in the slightest bit concerned about the delays. I have no intention of needing any treatment so the scan results are all academic aren't they? Still, if they can see what's causing this damn pain, that would be nice.
I went to a Fake Festival with Beckie on Saturday night, which as we were watching live bands (tributes to U2, Foo Fighters and RHCP) there was a lot of standing involved. Having been in pain mostly when sitting or lying it now seems I can't stand still, or even walk too much without some kind of payback. The tramadol, clearly aren't working for me any more - either I've become tolerant very quickly or the pain is worse. Who knows? I spent Sunday and most of Monday in bed - in too much pain to face moving and exhausted through lack of sleep. Monday afternoon I had to go out for veggies. By the time I got to the till I was nearly in tears. Standing in the queue I thought I might actually pass out, it was that bad and I was miserable (probably just overtired which makes things hurt more).
The nurse at Beating Bowel Cancer (they are in touch by phone, Twitter and Facebook) suggested I ask about fentanyl patches. They can last up to 3 days and the drug is 100 x stronger than morphine (which I'm allergic to). They even do it in a lollipop! Imagine having your drugs on a stick? I'm guessing that's for kids with chronic pain.
One of the lovely colorectal nurses rang me back today - left a message asking for their thoughts on pain relief, there are lots of drugs out there, but as MacMillan nurses are THE pain specialists, particularly chronic pain and obviously I have cancer so I qualify, she's referring me to them. Meanwhile I'll be queuing for an appointment at the surgery tomorrow morning - inconvenient for my boss though, who will have to be in the office while I'm out.
Here's hoping for some painfree sleep this weekend!
Tofu Red Lentil Shakshuka
1 day ago