I had a good night last night, in that I dozed off on the sofa I was so comfy, twice. I went to bed about midnight which isn't the best idea when you usually wake before 6, I'm trying to get back into some kind of sleep through pattern. I couldn't set the stupid timer to change the time the heating comes on in the morning, it's set to come on late because I was getting up late but coming on at 8.30 isn't enough when the carer comes at 9 so I set an alarm for 7.30 to put it on overriding the timer. Must try again tonight, it infuriates me. Even with the instructions it just wasn't happy, I must have pissed it right off.
Any way carer came at 9, helped me shower, made a cuppa and got me a bowl of Frosties (sorry Phoenix) I usually have plain cornflakes, muesli with yoghurt or rice crispies and a banana chopped up in them. It was nice to be clean but oh dear it takes it out of me so much. I think I won't be doing it every day, it's just too much. I need to set the hot water for morning at least - saving money by having a shower and even washing my hands in the shower (it's only me usually and I put it on for visitors here for any length of time, anti bac gel supplied). The washing machine and dishwasher are cold fill so I don't need the boiler working harder burning more precious oil just to wash my hands. Shower is obviously electric.
Donna came late morning and she stayed till about half past 5, just chatting, reminiscing, filling her in, talking about how wonderful our kids are and how much we love them, who they take after. One of the GPs from the practice came to see me and suggested I drop a steroid tablet and see if the headaches have gone in that the radiation has shrunk the brain tumour enough to take the pressure off. Need to remember that in the morning. Maggie came and heated some soup and buttered a couple of slices of bread, put some stuff in the dishwasher from this morning and that was all that needed doing really, though I did forget to ask her to take my laundry bin upstairs so I don't have a heap of dirty clothes on the floor. I asked Donna to do it instead. We had a lovely day just sitting chilling. Simple things.
At 6 I heard what sounded like someone messing with my bins, then looked out of the window and remembered I ordered my delivery for 6 to 8 hoping the carer or my friends could put it away. I told him I was very disabled and could he bring them into the house more so he did, and that included putting a basket that may have been on a wet outside floor on my SODDING NEW SOFA. What an inconsiderate idiot. I bet it was because I asked him to walk 5 more steps. He literally threw some ready meals on the floor, I asked him to put them in front of the TV so I could at least put the few fridge items and the frozen meals I ordered (putting the bags on the walker and in the little shopping bag thing on it.
My 6pm visit arrived at 17:48 and 10 minutes before she arrived I rang the hospice to see if they had an out of hours number for the care agency as I don't. Neither do I have this magic book every single person asks me about like it's my job to get one. Anyway they said if I need someone I'm OK to ring Marie Curie but I don't and Maurice and Sue are coming later, I'm sure they'd put things away. She's not English and came in the unlocked back door and didn't know where the key safe was. There is no communication in this team! I'll be ringing social services tomorrow to let them know how unsmoothly things are going....
She shouted at me in the same way English people shout at foreigners, either because she just does that or because I can only speak in a whisper. I told her she didn't need to shout, I just couldn't speak. She said "There's nothing to do?" What? I said I'd like her to put my shopping away, that I'd had to put the fridge and frozen stuff away because I was expecting her at 6. There were half a dozen Tesco bags on the floor right next to her in front of the TV. She started fumbling about on the coffee table picking up drugs boxes saying "this shopping?" Again WHAT? I had to point and tell her about 3 times before she could see what was right under her stupid nose. So she said she'd try and do all that, I told her she had 20 minutes and I'd had to put most of it away so she should have plenty of time. I also told her she needs to wait until I've finished speaking and not walk into the kitchen because I can't make myself heard. She said she'd go and have a look what I had in to have to eat. Told her I know what I have, I'd like the mushroom lasagne. She didn't ask me how to work the microwave but luckily figured it out. Then when it came to the shopping she was just going to take it and put it anywhere, I made her stop and let me tell her where stuff went, I can't be crawling on my hands and knees trying to find stuff because I don't know where it is in my own house. I say crawling because I expected her to put things in stupid places by which time I'd be too exhausted to stand. The kitchen paper she pointed out I got as far as saying "that goes in the bottom drawer...." she interrupted with "bathroom" "NO! You need to stop and listen to me finish, it's not toilet paper it's kitchen paper". She picked up a bag of potatoes and told me it was fruit. Sheesh. I'd already put the fruit on the worktop she just needed to take it out of the bags and put it in the fruit bowl. Then she made a cup of tea, my meal was ready and she checked to see where the key safe was for next time. Joy, looking forward to that, being treated like an idiot in my own home by someone who doesn't know the difference between fruit and veg or toilet paper and kitchen towel.
Right Maurice and Sue have arrived, time for normality!