Thursday, September 13, 2007
| Aaaagghhh. Can I have any MORE bad luck? Well after the good news from Onco re reduced dose AND sentence (it feels like I got parole for good behaviour) AND the Willow Foundation coming up trumps with our break in Sherwood Forest I think I got a bit complacent. Had some family dramas this week resulting in me spending more time with my ex husband than I have in total over the 10 years we've been apart and in my house too. How civilised are we? Funny how you can put differences aside when it comes to your kids isn't it, well MOST of us can. Anyway because the first three days of this week were very stressful (I could hear my heart thumping loudly and was pretty sure my blood pressure was high) I just couldn't face the shower, the bath guard, the hairdryer, the straighteners or finding something I've not yet worn to the chemo suite to go and have my line flushed. It's been sore this last week and I have a swollen pus-filled red hot lump around the entry site. On Tuesday due to a hot sticky night (yeah that fabulous radiation induced menopause again) the waterproof dressing started to come away a bit so I cleaned it with a swab from my supplies and stuck some new gauze and another waterproof dressing on as a temporary measure to absorb the yukky stuff. Today after some Chemicals (as in The Chemical Brothers at full blast) I felt up to dragging myself into the shower and witnessing large quantities of hair block up the bath trap - having to empty it three times to drain the shower afterwards. It's getting a bit upsetting now seeing it on my pillow. More hair comes out when I wash it that when it was a foot longer, defo the chemo! Cringe! I arrived at the chemo suite about 3.45 and got a prime disabled spot in the free car park (say what you like about cancer, free parking is always a bonus). Thought as I'd only had one slice of toast all day and three ginger biscuits I ought to eat something else (hunger signals don't appear to reach my brain any more and I'm trying to maintain my weight but god it's hard, never thought I've have that problem). I had a healthy lemon chicken wrap, a piece of cake (for calories) and a packet of French Fries, salted of course to replace what I collect in the bag on daily basis. Needn't have rushed because I didn't get seen for an hour. They did have the requisite three nurses which was a bonus but a LOT of patients so I waited outside and forced the food down, wishing I'd got a drink because my tongue is cracked which I think means I'm dehydrated AGAIN. Matron (ooo matron) looked at my dressing and was NOT happy. In fact she said how unhappy she was with it approximately 7 times, just to me. Lisa the nurse looked at it, they called the Lone Ranger down to look at it. Matron took a swab to see what it grows in the lab - hopefully another life form, maybe a cure for colorectal cancer? She cleaned it up while the Lone Ranger scrawled a prescription for antibiotics and it started bleeding - this made her VERY unhappy. I'm thinking, should I actually be worrying at this point? I keep carping on to the kids that they must wash their hands etc because I have to avoid infection and still managed to get one under waterproof dressings. Lisa literally "ran like the wind" in her own words to try and make it to the pharmacy before it shut at 5pm, but not fast enough. She rang my surgery who said I could go to their pharmacy to get it. Great. New dressing on after the air had got to my seeping wound, which by the way smells rotten and off I went. The Pharmacy refused to fill the script. To be fair it does state only to be used in hospital pharmacy on it, but you know I'm a bloody cancer patient, I'm on chemo, I have lowered resistance to infection - which could kill me if my white cells are low enough (they're not right now, don't panic), give me the sodding drugs. Snotty chemist bloke said he couldn't apologise for something someone else had done and that I needed to make an appointment with my GP and get him to redo it. FFS! After a half hour wait in the surgery (no-one admitting to taking the phone call which I heard Lisa make myself) one of the docs put the prescription onto a different piece of paper and then snooty chemist bloke accepted it.............at first then told me (at this point I was close to tears) that usually you get the drug four times a day but GP had put 3 times a day on the script. I pointed out that the GP didn't prescribe it, my oncologist did (his attitude changed a bit at that news). He asked if I wanted him to check with the GP and did I have the original hospital script. Duh! No! They won't let me walk around with two will they? I told him it had been shredded by the receptionist but since I've had half my guts ripped out, four months of chemo and now had an infection I didn't really want anything else to go wrong so, yes, whatever he thinks best. I'm on three a day - possibly not enough, as the Lone Ranger said I was to have five days, they've assumed the quantity is over seven - quick maths means I have enough tablets to do either! I've necked two for good measure (on an empty stomach - no worries I hardly ever eat). I have to go back to the chemo suite tomorrow to have the dressing redone if it's messy again, then I have an appointment on the ward (ooer that's special treatment innit?) for Saturday as Matron is really NOT happy leaving it until Monday, especially with the bleeding and smelly yukky pus. Grim. Hopefully they'll whip me into isolation and let me have some rest from family troubles and warring cats (my son's pregnant cat is here and hates Skittles). I have a few wounds on my hands from intervening in the odd cat fight. Not recommended in my chemo book of truth. Cancer's shit. 20:42 - 8 Comments - 5 Kudos - Add Comment - Edit - Remove |
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